mamabrat2000 (November 30, 1999 at 12:00 am)

My daughter is now 17 and retts. I loved reading how you said how they talk with their eyes! Boy isn't that the truth! Megan can back talk with just a look! GOd Bless you and your sweet angel.

anto0204 (November 30, 1999 at 12:00 am)

Hi.I don't speak very weel ingleh. I am italian.and I have sister whit Rett Syndrome. she's 10. she not speak she not walk she not eat alone and she can't chew. I am safe that here bat i want compare whit the families whit children affected by this disease. bey bey. Anto

matt11080 (November 30, 1999 at 12:00 am)

you are truly blessed to have a angel touch your life, as I have, looks like a silent angel (rett synd). A simple blood test from both you and her will tell you.Good luck and remember we always wish or children can be like everyone else, but don't you see she is perfect the way she is, she don't lie, hurt others nor herself. Sometimes I wish others could be a little like her!!

vx90080 (November 30, 1999 at 12:00 am)

im sorry to hear that mark. my little sis has it and she is 9, but at least your sister is not in pain anymore...ett

vx90080 (November 30, 1999 at 12:00 am)

hi, my little sister is 9 and she has rettsi love her so much but she might need to have an operation on her spine as it is severely bent. we are all at home wondering wether to have the operation because there is a very high risk that she would not pull out of the anasthetic and we would lose her. also you said about fits, every now and again do her eyes lock and her body go into spasm? as my sister has been having them and it turned out to be distonia.good luck with your little angel

veiledexpressions (November 30, 1999 at 12:00 am)

Autism runs in my family as well, however, Rett Syndrome is completely random. It can happen in any family. While RS is considered an ASD, it is quite different in many ways. Try not to worry. I know it's easier said than done as a parent! :)

marshmelotz (November 30, 1999 at 12:00 am)

the tears are rolling down my face right now, i cant believe something so precious has to live with this.first off she is beautiful, in every way, and my prayers are with her.second off, after years of trying i had my first baby, a girl...she is now 9 months, and is developing perfectly, and quickly...i know retts is linked to autism, i have a brother with autism, and i am sooo fearful of my daughter having retts or autism...i cant handle this worry..

babynoah722 (November 30, 1999 at 12:00 am)

omgoodness Ciara Ann is such a beautiful little girl, and although living w RS she looks like such a happy child & she has an amazing family also. Just remember she is just the way she was meant to be -Heather

suitmark (November 30, 1999 at 12:00 am)

Thank you for the video. I lost my sister yesterday and she had Rett syndrome. She was 34. Mark

solidrecording2012 (November 30, 1999 at 12:00 am)

thank you so much for sharing did you see my little ones Ariana (same song lol) take care and god bless you and your little silient angelThe Contreras Family