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Sierra & Rett Syndrome


Sierra is now 4 yrs old and has Rett Syndrome. Thats her twin brother in the picture. They started out developmentally at the same level but the gap started growing between them. Rett Syndrome is a neurological disorder that causes severe regression and loss of gross and fine motor skills, speech, and causes a host of medical problems like seizures, scoliosis, reflux, and GI problems. It is often misdiagnosed as CP or autism. There is no cure.

Channel: People & Blogs
Uploaded: November 30, 1999 at 12:00 am
Author: laineyful

Length: 02:33
Rating: 4.85
Views: 7039

Tags: autism  cerebral  OneTrueMedia  palsy  rett  syndrome  

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Video Comments

Expremium (November 30, 1999 at 12:00 am)
wonderful !
kurfew1100 (November 30, 1999 at 12:00 am)
good song to go along with the video! hope shes doing well!
tracyleerose (November 30, 1999 at 12:00 am)
Enjoyable video, Rett girls are so pretty. Thanks for sharing
bfarnu (November 30, 1999 at 12:00 am)
Will do. Ella's video is on here as well, call"Ella 12-16 months"..Take care,Bill
laineyful (November 30, 1999 at 12:00 am)
Thanks...yes she is that Sierra and is doing great with ABA! I would love to talk about it more with you! You can email me through the Rettnet and I can tell you more.Thanks for posting!
bfarnu (November 30, 1999 at 12:00 am)
Hi , she is beautiful. Our little angels can shine thru so much eh? is this the same Sierra that said you had positive results from ABA on Rettnet??Thanks, our daughter has RS as well and would love to talk to you about ABA.Take care, the Farnums
mentalmummy (November 30, 1999 at 12:00 am)
what a beautiful little girl
ButlerCrew (November 30, 1999 at 12:00 am)
She is Beutiful! Thank you for posting this video.Kelly, Mom to Brooklyn 2 1/2 RS
ajloveshbk666 (November 30, 1999 at 12:00 am)
this is a very lovely video :)
BenedictC (November 30, 1999 at 12:00 am)
Finally someone who knows that rett syndrome isn't a form of autism :D




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